I found this article via a blog by Liz Spikol. She’s an editor at the Philadelphia Weekly, a woman with bipolar disorder who writes an informative, well-written, and sometimes personal blog about mental health. Her blog is well worth visiting, but right now I’m taking a closer look at the article by Charles Barber to which she points.
Each article or story poses its own question. It’s kind of like Jeopardy. You read the answer and you have to figure out the question. The question that Barber’s article is answering? Or some of the questions? Here’s what I think:
Who gets to speak about healing?
Who gets to be an author when it comes to healing?
And on what is that authority based?
Charles Barber’s primary source of authority? He’s been there. His initiation into mental illness occurred when he was a freshman in college and began developing disturbing and intrusive thoughts. His other primary source of authority? He found a way through the disturbance, found a way to make a life. Barber is also a journalist, which means he has writing skills, and investigative skills, and experience. And he’s done years of work with others who are mentally ill.
And now he’s telling some of his own story. Describing it as “a winding, agonizing road to stability.” That’s what interests me about this article—the winding, agonizing road. It's a story that’s important to put out there. Over and over again, it’s important to put this kind of story out there. Because the counter-narrative—the narrative that we frequently see on television—in programming as well as in commercials—the narrative of the quick fix—this can be so incredibly seductive.
Barber begins his article by touching on this counter-narrative. The television commercial with the man or woman, first in agony, and then taking a pill: transformed. A new person. A person “walking in a park, awash in sunshine, surrounded by grandchildren, a golden retriever nipping at their heels, while lush music plays in the background.” The restitution narrative that Arthur Frank names and writes so well about.
And then Barber shares something of his own very different and much more real story.
Medication was helpful—as was cognitive behavioral therapy, particularly early on—but what ultimately made the difference, what really made me want to get well, was finding a sense of purpose in my new life, a life that had been reconfigured by illness.
The critical moment in my own recovery was my decision—very unpopular at the time—to work full-time in a group home for people with severe developmental disabilities, young men my age who could not talk.
It’s hard not to think here again of Arthur Frank—his third narrative. The quest narrative. The narrative in which some meaning is found through the experience.
What interests me most about Barber’s article is where he lands at the end of it. What he believes allowed him to find his way to a meaningful recovery.
He writes:
This leads us to the final lesson I’ve learned: Treatment is most effective when the patient is in charge and the ultimate expert in his or her own recovery. There is evidence that when patients feel in control, the results of treatment are better. Treatment works best when the doctor or therapist acts as a kind of expert consultant. As Home Depot puts it: ‘You can do it, we can help.’
That’s what I found in my own process. That my journey was a self-directed path, one in which I saw myself as the author of my recovery [emphasis mine] rather than a passive recipient of a pill, made all the difference.
He continues:
But these complex lessons about the arduous realities of attaining emotional health, as told not by doctors or companies but by patients, have received little traction in mainstream health care and the mainstream media.
Perhaps. And perhaps I’m being overly optimistic here, seeing the cup as more full than it actually is, but my own sense is that these narratives are gaining more traction than they ever have before. Certainly, they have more traction than they did—or than I was aware that they did—when I went through my own medical training twenty-plus years ago now.
Narratives which tell a complex story of healing—of a troubled mind and/or a troubled body—these are beginning, I think, to gain more traction. And I, for one, would like to do my own small part to help coax that process along.
Thus the links above. And I’ll repeat them again here:
The Trouble With Spikol by Liz Spikol
Healing a Troubled Mind Takes More Than a Pill by Charles Barber


